For Black Mothers and Birthing People

Thank you for your interest in the SACRED Birth study.


The SACRED Birth Study officially ended January 31, 2021.

Congratulations to all who made this happen, especially to Black mothers and birthing people. Study enrollment for the SACRED Birth Study ended 1/15/2021. Data collection from existing enrolled participants ended 1/31/2021.  Since the online release of the Patient Reported Experience Measure of OBstetric racism©, also known as the PREM-OB Scale™, on October 19, 2020 for data collection:

  • 2,480 people clicked on the website's referral link. 
  • 64 people were referred by providers.
  • 1,655 people completed the online self-screening and signed the consent form.
  • 845 people signed the consent form AND completed the contact form, passed the phone verification process, and did NOT later withdraw or decline to continue.
  • 815 Black mothers and birthing people fully consented, completed the contact form, passed ALL phone verification processes, completed the enrollment survey, and completed the final survey by 1/31/2021.
    • Birthed in California in 2020 (goal = 400) = 297 (74.25%)
    • Birthed in Memphis, TN in 2020 (goal = 100) = 47 (47%)
    • Birthed elsewhere in the U.S. in 2020 (goal = 500) = 471 (94.2%)

By ending the study BEFORE 2/28/2021, we completed study enrollment and data collection in gratitude and abundance, with financial and social integrity.

We will have the first and only soon to be validated Patient Reported Experience Measure of OBstetric racism©, also known as the PREM-OB Scale™, one of the most culturally and scientifically rigorous perinatal PREMs.

Thank you ALL for supporting Black mothers & birthing people and our team.

LABOR

BIRTH

POSTPARTUM

Click on the arrows at the end of the gray highlighted areas to reveal important information about study eligibility, enrollment, risks, benefits, and payment.

Why is the SACRED Birth study being done? Please note the SACRED Birth survey validation study ended January 31, 2021.

The goal of this study is to test a new survey tool designed in 2019 and owned by Dr. Karen A. Scottt, MD, MPH, FACOG, the Patient Reported Experience Measure of OBstetric racism©, also known as the PREM-OB Scale™. The PREM-OB Scale™ is the first and only patient informed quality improvement (QI) measure developed in 2019 for, by, and with Black mothers and birthing people, in equitable and dignified partnerships with Black women-led community-based organizations.  The PREM-OB Scale™ allows for Black mothers and birthing people to share information about their unique patient experiences in hospital settings during labor, birth, and postpartum.  The information gained from the PREM-OB Scale™ will help hospitals, health plans, scientists, funders, and the public better understand how obstetric racism and other forms of neglect and mistreatment affect the ways that hospitals provide care, services, and support to Black mothers and birthing people during labor, birth, and postpartum.

Am I eligible to participate in the SACRED Birth study? Please note the SACRED Birth survey validation study ended January 31, 2021.

You may be able to join if you:

  • identify as Black or African American
  • are 18 years of age or older
  • gave birth to a live newborn in 2020
  • gave birth in a hospital in 2020 in the U.S., with a focus on California and Memphis, TN

How do I enroll in the SACRED Birth Study? The SACRED Birth survey validation survey ended January 31, 2021.

Black mothers and birthing people who gave birth in 2020 who want to enroll in the SACRED Birth Study: CLICK HERE

 

What will happen if I decide to participate in the SACRED Birth study? The SACRED Birth survey validation survey ended January 31, 2021.

  • A member of the study team will contact you by phone, e-mail, or text to discuss the study.
  • You will be asked to review an information sheet shared via a link, email, or text and to verbally agree to participate in the study.
  • You will complete a one-time online about your overall health and wellbeing, pregnancy history, birth type (vaginal or cesarean birth), and hospital experiences during labor, birth, and immediate postpartum.  
  • You will also be asked about any COVID19 related experiences impacting your pregnancy from labor to hospital discharge. 
  • You will be asked to complete a medical records release form so we can obtain a report of your hospital birthing experiences and COVID19 evaluation.  Medical records are kept confidential. Before we request any medical records, you must sign an Authorization for Release of Health Information which will specify which records will be released. You may still participate in the study if you do not agree to the release of medical records.

Can I review the Informed Consent form before deciding to participate in the SACRED Birth study? The SACRED Birth survey validation survey ended January 31, 2021.

Yes! CLICK HERE to review the informed consent form for the SACRED Birth Study.

How often will I complete a survey?

You will complete a one-time online survey about your hospital experience AFTER you complete the online self-screening, informed consent, contact form, and enrollment survey.

How are surveys completed?

The one-time survey can be completed online (via e-mail or scanning a QR code). 

How will the SACRED Birth study use my information?

SACRED Birth researchers will use your information from the the Patient Reported Experience Measure of OBstetric racism©, also known as the PREM-OB Scale™m to improve the actual survey itself for future purposes in many hospitals across the United States in 2021 and beyond.  Your information will be used to develop a list of best practices for hospitals to consider in redesigning the care, services, and support they provide during labor, birth, and immediate postpartum for Black mothers/birthing communities.  Once the study is done using your information, SACRED Birth researchers and community partners may share your information with other researchers and hospital leaders at conferences or in publications.  Sharing the information can help future research studies and hospital teams improve their support of Black mothers and birthing people during pregnancy, labor, birth, and postpartum. We will not share your name or any other personal information that would let the researchers know who you are. We will not ask you for additional permission to share this de-identified information.

Will I be paid for participating in the SACRED Birth Study?

Yes, you will be paid for participation the SACRED Birth Study with an electronic gift card. The amount varies depending on your participation:

  • You will be paid $100 for the one-time online group interview.
  • You will be paid $150 for the one-time online individual interview.
  • You will be paid $100 for the one-time online survey within 7-10 business days of completing the suvey.

For additional questions or concerns: The SACRED Birth validation study ended 1/31/2021.

You can talk with the study researchers about any questions or concerns you have about this study at any time. Contact the SACRED Birth study team by phone at (510) 545 -2989 or click here to send as email [email protected]

If you wish to ask questions about the study or your rights as a research participant to someone other than the researchers or if you wish to voice any problems or concerns you may have about the study, please call the office of the Institutional Review Board at 415-476-1814.